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Formerly known as the Ileostomy Association
of Great Britain and Ireland, is a mutual support group
which has the primary aim of helping people who have
had their colon removed. It was started in 1956 by a
group of people who had ileostomies themselves, together
with some members of the medical profession. It was
the first ostomy association in the United Kingdom and
it is a registered national charity (no. 234472). The
link is to the main website.
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If you are one of the many individuals
who have been offered or already have an ileo-anal pouch,
then you will know what it feels like to take the decision
to go ahead with the surgery - it's daunting. Ileo-anal
pouch surgery, (or restorative procto-colectomy to give
it the surgical term) is increasingly being offered
to patients who require surgery to remove their colon(
Large Bowel) following certain chronic bowel disorders
such as Ulcerative Colitis and FAP. There are various
forms of pouch, the J pouch, the S pouch, the W pouch
and the kock pouch, however, most surgeons opt for the
J pouch due to its "simple" construction.
Unfortunately, some patients are not eligible to be
offered the surgery due to the risk of increased complications
following the surgery, such as those with Crohn's disease.
For those patients, the only option is to have the affected
part of the bowel removed with the possibility of having
a permanent ileostomy if the colon is too badly damaged
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Aims to support the association's younger
members, and other young people, either pre-surgery
or post-surgery, who undergo either an ileostomy or
an internal pouch. At present ia's young members are
defined as those under the age of 40. Young ia organises
an annual social weekend when all young members are
invited to come together to share experiences and make
new friends. This is open to everyone.
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Until recently The British Colostomy
Association, is the national registered charity which
represents the interests of people with a colostomy
and which provides support, reassurance and practical
information to ostomates and anyone who is about to
have a colostomy.
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This website is for people with (Inflammatory
Bowel Disease - IBD) and their families
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New
Link to the UK charity
for people who have, or are considering having, a pouch
operation.
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| Online Support Group - A
community of patients, family members and friends dedicated
to dealing with Crohn's Disease, together. |