Education and Research

May 2007 - This is where we hope to add the latest education and research news without getting too complicated. Sometimes it will just be a link to an external website because of copyright rules.

We welcome any items for inclusion and provide this information with no charge at all.

Networking Project - Krystle Kontoh Project Officer - Facilitating Networks Genetic Interest Group - Over the course of the next three years (Aug 2008 - Aug 2011) I will be supporting the development of three networks of clinical expertise with 8 of our members. One of these groups is FAPGene.

Artwork Project - Sculpting a Voice for Genetic Disorders is an artist initiated project to raise awareness of living with a genetic condition through the visual arts.

Julia Thomas is an artist with a research background in bioscience. After having gone back to college to further her studies in Art & Design, she now wants to combine the skills and knowledge of both her scientific and artistic backgrounds. In particular, her mission is to work with health related issues and health/science organisations to inspire artwork that will help to raise awareness for those affected.

Alfa Capsules Omega 3 - At our 2006 Family/Information Day we had an interesting insight into Fatty Acid Capsules. The company concerned SLA Pharma now have a website specifically for their ALFA Capsules and are looking at further trials later in the year. Includes Radio Interview with Roger Leicester OBE

Huntsman Cancer Institute Familial Colon Cancer Registry - A link to their newsletters.

Telling Stories - A new educational website from The National Genetics Education and Developement Centre in Birmingham. There are two stories from patients with FAP.

FAP for Kids - a book especially for children with FAP Published in the U.S.A. for The National Society of Genetic Counselors.

Opaldia Ltd Newsletter - Opaldia is the UK's premier private provider of genetic medicine and lifetime wellness programmes.

Family Talk Study - A team of Researchers from The University of Birmingham request your help with part of this study into FAP.

A Special Edition of The Familial Cancer Journal on FAP - We have been given two copies of The Journal and include the titles of the articles and a website link for complete details. We feel this is a very important Journal and hope it will help to improve knowledge to the benefit of patients with FAP.