Education and Research

May 2007 - This is where we hope to add the latest education and research news without getting too complicated. Sometimes it will just be a link to an external website because of copyright rules.

We welcome any items for inclusion and provide this information with no charge at all.

Networking Project - Krystle Kontoh Project Officer - Facilitating Networks Genetic Interest Group - Over the course of the next three years (Aug 2008 - Aug 2011) I will be supporting the development of three networks of clinical expertise with 8 of our members. One of these groups is FAPGene.

The Northern Primary Care Genetics Website  This website has been developed to provide an important resource for all those working within Primary Care. The site has been developed by The Primary Care Genetics Service for The North of Tyne, in collaboration with The Northern Genetic Service for the region.

It provides information on a range of genetic subjects relevant to Primary Care. In addition it aims to raise the awareness of the role of the Primary Care Team in the identification, prevention and care of genetic conditions and of inherited factors in the predisposition of common disease such as cancer, ischaemic heart disease and diabetes.

Artwork Project - Sculpting a Voice for Genetic Disorders is an artist initiated project to raise awareness of living with a genetic condition through the visual arts.

Julia Thomas is an artist with a research background in bioscience. After having gone back to college to further her studies in Art & Design, she now wants to combine the skills and knowledge of both her scientific and artistic backgrounds. In particular, her mission is to work with health related issues and health/science organisations to inspire artwork that will help to raise awareness for those affected.

Alfa Capsules Omega 3 - At our 2006 Family/Information Day we had an interesting insight into Fatty Acid Capsules. The company concerned SLA Pharma now have a website specifically for their ALFA Capsules and are looking at further trials later in the year. Includes Radio Interview with Roger Leicester OBE

Huntsman Cancer Institute Familial Colon Cancer Registry - A link to their newsletters.

Telling Stories - A new educational website from The National Genetics Education and Developement Centre in Birmingham. There are two stories from patients with FAP.

FAP for Kids - a book especially for children with FAP Published in the U.S.A. for The National Society of Genetic Counselors.

Family Talk Study - A team of Researchers from The University of Birmingham request your help with part of this study into FAP.

A Special Edition of The Familial Cancer Journal on FAP - We have been given two copies of The Journal and include the titles of the articles and a website link for complete details. We feel this is a very important Journal and hope it will help to improve knowledge to the benefit of patients with FAP.